A documentary about Celine Dion called “I Am: Celine Dion” has been produced and followed the Canadian songstress as she battles SPS (Stiff Person Syndrome), a rare neurological disorder that affects the brain and the spinal cord.
Celine shared news about her diagnosis back in late 2022, saying that she had to postpone her world tour due to her rare condition that impacted the way she walked and sang. Late last year, her sister Claudette revealed that the singer had lost control of her muscles.
“This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me,” said Celine in the documentary. “As the road to resuming my performing career continues, I have realised how much I have missed it, of being able to see my fans.”
“During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis.”
In a statement, head of Amazon MGM Jennifer Salke expressed, “This documentary is a raw, intimate portrayal of a pivotal time in her personal life and career, pulling back the curtain on her journey as she overcomes an unthinkable diagnosis.”
“I Am: Celine Dion” was directed by Irene Taylor, who has helmed “Trees and Other Entanglements” and “Hear and Now”.